Davin's NEW Medical Status

We had our visit with the pediatric pulmonologist today. We woke up early and made the long voyage to Bryan's work to pick him up on the way and then out to Phoenix Children's Hospital. I could have seen another Dr that was closer but since we had a very good history out at PCH (finally after every other hosptial thought we were full of crap), I thought we would stick with these doctors. The doctor was very nice and gave us a couple options. He could still hear some roughness in Davin's lungs amid the thickened feeds, reflux meds and pulmicort treatments (a steroid we give to Davin through his breathing machine).

It was decided that we are going to try and get Davin to actually complete the modified barium swallowing test (mbs) and then follow that with a pulmonary test that will put a tube with a camera on the end of it down into his throat and lungs to look around and see what's going on in there. Neither of these tests are dangerous but they aren't fun. The MBS makes Davin swallow this nasty stuff and he has to keep it down and then it usually follows with really uncomfortable constipation. The pulmonary test involves an IV and sedation which is always difficult as parents to watch. They won't allow Bryan and I during the test either which is heart breaking knowing that we are willingly giving him to them and knowing what they're doing. Even though it won't really hurt, it will make Davin so scared and I don't want to ever make him feel abandoned.

Amidst my heart break for Davin's discomfort during these tests, I hope that we will finally get some answers. He is such an amazing and high spirited little boy, I just want him to be normal and not have to take a puff of some medicine every time he runs and gets winded. Keep him in your thoughts and prayers please.